This is how you can support children with short and precious lives

We’ve all had to change our lives to protect the most vulnerable in our community — and the way we fundraise has changed too.

You could do a sponsored garden marathon, or socially distanced bike ride. You could host a digital disco, virtual quiz night, or video call your colleagues for an online coffee morning.

However, you and your loved ones get fundraising, you can make sure families where children have a life-limiting condition get the support they need during this crisis and beyond.

This is Finley

“Lockdown won’t ease for us as a family for a long time. Jessie May provide a lifeline for my family. I would be lost without them.”

Finley was born with a very severe muscle weakness. He has a genetic condition which affects every muscle in his body. He remained on NICU for 5.5 months and eventually came home on a palliative route. A certain degree of isolation can be the norm for families whose children have life-limiting conditions. But the coronavirus risked leaving the family even more cut-off from their support networks.

Thankfully, with the right PPE equipment Jessie May nurses have been able to continue visiting Finley so that his family still have the support network they need even during this unprecedented time. But hospices like Jessie May need your help to provide this much-needed support. We need your help so we can care for children who need to self-isolate — as well as to continue providing end of life care to children and families when it’s time to say goodbye.

This is Gemma

“Families with children with life-limiting conditions are isolated in normal times. Under lockdown it’s even more important we reach out to them.”

Gemma is a Jessie May nurse providing a hospice at home service. She’s on the frontline every day, caring for children and families who are having to self-isolate during the coronavirus crisis.

This is Steve

“I thought to myself, how can I fundraise during lockdown? I’ll climb Everest on my stairs at home!”

Steve’s a keen runner and has fundraised for Jessie May before, during lockdown he came up with this climbing challenge that took him outside of his comfort zone to raise money for children with short and precious lives.

Show us what you’re up to

We want to see how you are raising money for children with short and precious lives in the coronavirus crisis. From a selfie running your garden marathon to a screenshot of the family Zoom quiz, please post your pictures on Facebook, Twitter or Instagram, or email them to the team, and we’ll share to inspire others to get involved.

When you download your digital kit you’ll find loads of fun ways to make your fundraising even more fun! From customisable Zoom backgrounds to inspiring ideas and funny gifs to share on social media, you’ll find everything you need to support children with short and precious lives this Children’s Hospice Week.

Trouble deciding on a fundraiser? Spin the wheel!