Governance is about ensuring that the charity carries out and is able to continue to carry out its purpose as set out in its objects, to the best of its ability within its resources, effectively, legally and safely.

The Charity Commission

As a Registered Charity 1086048, we are accountable to The Charity Commission which registers and regulates charities in England and Wales and to whom we report on an annual basis. Our annual reports to the Charity Commission can be viewed by clicking here

Companies House

Jessie May is also a Limited Company 04118341 which means that the Trustees of the charity who are also the directors of the company have limited liability and thus protection against personal claims being made against them. We also report to Companies House on an annual basis. Information filed to Companies House can be viewed by clicking here


Jessie May is a member of the Institute of Fundraising and we report on our fundraising activities to the Fundraising Regulator, which replaced the Fundraising Standards Board in 2016. This is our commitment to raising the standard of our fundraising practice and making us accountable for how we spend the money you donate.

Board of Trustees

Our Board of Trustees or Directors are responsible for the good governance of the charity. This involves developing the strategy, assessing the risks, ensuring compliance, monitoring the finances, workplans and quality and supporting the staff. The Board meets every quarter to conduct its business and receives reports from the Chief Executive Officer and from a number of sub-committees which have delegated responsibility from the board to examine matters in more detail. These committees, each chaired by a Trustee, are for Finance and Resources, Fundraising and Marketing and Clinical Governance. Click here to see a list of our Trustees

Day to day responsibility for governance is delegated to the Chief Executive Officer. The Chief Executive Officer has regular 1:1 meetings with senior staff as well as a regular senior staff meeting involving the Care Team Manager, Head of Fundraising and Communications  and the Office Manager.

Ensuring the Quality of our Care

Jessie May is registered with, and regularly inspected by the Care Quality Commission. The Care Quality Commission is the health and social care regulator for England. They look at the joined up picture of health and social care and aim to ensure better care for everyone in hospital, in a care home and at home. To view our listing and up to date CQC reports please click here .

Clinical Governance Group

The Jessie May Clinical Governance Group was established in 2006 to safeguard the highest standards of care and to monitor the continual improvement in the quality of service provided by Jessie May Nurses. The Group members include  Jessie May Nurses, the Head of Nursing at Royal Bristol Children’s Hospital and health professionals who have an expertise and interest in palliative paediatric medicine and care, some of whom are also Trustees and Directors of the Charity. This group also includes three Parent Representatives.

Service Improvement Log

We are always keen to hear what you think about the work that we do. We keep a log of any comments, ideas, suggestions or complaints about our service by children and families or other professionals. We are also proactive in seeking feedback by providing feedback cards to families on visits and on group occasions. These are regularly reviewed to ensure that any trends are noted and action taken to improve the service.

If you would like to comment on what we do then do please take the time to tell us. You are welcome to e-mail us at

Focusing on Outcomes

Our outcomes group meets four times per year ensuring that we continue to generate positive outcomes in each of the following areas:

Children and Young People

  1. Increase the happiness and confidence of each child
  2. Increase the amount of time each child can spend safely in their family environment including at end of life
  3. Increase each child’s social experiences


  1. Increase confidence of parents and children to care for their child
  2. Increase the parents sense of belonging to a supportive community of other parents and the Jessie May team.
  3. Maintain the family unit by increasing resilience and reducing the medium term risks to their physical and mental health and well-being.


  1. To demonstrate the effectiveness of Jessie May’s approach to children’s palliative care


  1. To improve children’s palliative care in the UK

Service User Involvement

Our Jessie May Family Group meets 4 times a year which is an opportunity for us to consult families on any service development plans or other issues that might affect them. Family representatives take feedback into the clinical governance group

Family Feedback

Each family is given a formal opportunity to feedback their likes and dislikes on an annual basis. This feedback is taken to the Clinical Governance Group and entered into our service improvement log. Families then receive comments on their feedback from Jessie May.

Teenage Respite Day – Report

On 8th October 2016 we were able to offer four teenagers the opportunity to take part in a day out to Weston super Mare, accompanied by Jessie May Nurses. The report from the day can be found here.

Report on the Service Evaluation forms July 2015 – June 2016

Please click here to read a report on Service Evaluation forms from July 2015 – June 2016.


At Jessie May we aim to provide a family-led service that best meets the needs of your child or young person alongside the rest of their family. We welcome your feedback to help us improve, and if things go wrong or you are dissatisfied, we want to know. Jessie May guarantees that your concerns will be taken seriously and that we will do everything we can to put things right. We welcome feedback at any time. You can give your feedback directly to a Jessie May Nurse, email us, or write to us. For full details, please read our Improve your Service leaflet by clicking here: Jessie May Improve Service Leaflet.