Useful links
We've listed some links to other organisations which we hope may be of interest to families/carers or health professionals.
ACT (Association for Childrens Palliative Care)
Raises awareness about what families and children need, helps professionals to deliver the best possible care and support, and provides families with information and help.
Advocacy Services (link to The Care Forum Advocacy information & resources webpage)
Advocacy is a means of offering support to get someone's voice heard. If you feel unable to achieve what you need because the process is too complicated, or the organisation is too powerful, and you feel confused or scared by the prospect then an advocate can help you to get your views across. Also see Action for Advocacy - a central point of information on independent advocacy in England & Wales.
Directory of services, community and voluntary organisations, clubs and groups in Bath & North East Somerset, Bristol & South Gloucestershire offering support, advice & guidance to children, young people, parents, carers and professionals.
Benefits Adviser Service - Direct Gov
The benefits adviser is an interactive tool to help you find out what benefits and tax credits you may be entitled to.
Bristol Royal Hospital for Children - Patient Advice & Liaison Service
Offer information and support on - healthcare issues and NHS services, negotiating a quick resolution to problems, liaising with staff and other organisations, providing support and advocacy for more complex issues, explaining how you can make a formal complaint.
Care Co-ordination Network UK (CCNUK)
Networking organisation promoting and supporting care co-ordination or key working for disabled children and their families in England, Northern Ireland, Scotland and Wales.
Provides information and advice about voluntary and statutory sector health & wellbeing services across Bath & North East Somerset, Bristol, North Somerset & South Gloucestershire.
Independent regulator of health and social care in England provided by the NHS, local authorities, private companies and voluntary organisations.
Supports families and educates professionals both when a child dies and when a child is bereaved.
National charity that gives voice and support to all children's hospice services.
Umbrella body for the disabled children's sector in England, with links to the other UK nations.
Provides support, advice and information for families with disabled children, no matter what their condition or disability.
ERIC (Education and Resources for Improving Childhood Continence)
Provides information, support and resources to families and health professionals on bladder and bowel problems.
Considers grants for things that make life easier and more enjoyable for the disabled child, young person and their family.
NHS team of Community Children's Nurses, Psychologists and Health Care Support Workers offering a needs-led community service within the Bath and surrounding PCT areas for children with a non malignant, life threatening illness and who may require complex health care.
Grants magical wishes to children and young people fighting life-threatening illnesses.
National Centre for Young People with Epilepsy (NCYPE)
National charity providing specialist services and support for children and young people with epilepsy and other neurological conditions.
Newlife Foundation for Disabled Children
National charity providing equipment, nurse led telephone support service, pioneering medical research, awareness and campaign action for disabled & terminally ill children.
North Somerset Family Information Service Directory
North Somerset Council's directory for information on local childcare, activities and organisations of interest or support to children, young people, parents, carers and professionals that work with them.
The Princess Royal Trust for Carers (Carers Centres)
Provide a network of independently-managed Carers' Centres and interactive websites offering information to carers.
Support for siblings who are growing up with or who have grown up with a brother or sister with any disability, long term chronic illness, or life limiting condition.
South Gloucestershire "Yellow Book"
A guide to services for parents and carers of children with additional (special needs) who live in South Gloucestershire.
Parent-led organisation providing the Parent Partnership Service for Bristol, South Gloucestershire and North Somerset. Confidential service provides independent parental support to parents of children with special educational needs.