Jessie May are backing the 6 national charities who are calling for the Government to act to ensure the ability for families to make their own personal palliative and end of life choices regardless of postcode.
A Westminster reception was held on 31st January with Together for Short Lives, The Brain Tumour Charity, Clic Sargent, Teenage Cancer Trust, Marie Curie and The National Gold Standards Framework Centre in End of Life Care, calling for the Government to put an end to the cruel postcode lottery faceing parents with dying children.
We are supporting the campaign to ensure that the Government meets its end of life choices committment for babies, children and young people by implementing NICE (National Institue for Heath and Care Excellence) guideline on providing children’s palliative care.
We are really proud of the support which we offer all our families in the wider Bristol area and hope that Nationally families recieve the same level of care in the future.
Here is a statement from Chris Roys our CEO –
‘The one thing we should and must do for a dying child is to ensure that they have a peaceful, dignified and pain free death as possible – in the place of their choice. Most often this will be in their own home. To know that so often this is not possible is heartbreaking. Families have to live with the trauma forever. Jessie May was set up to try and ensure that children can have a choice to die at home, just like Jessica May herself did. Government must commit the resources and funding to ensure that children wherever they live are properly cared for and supported at the end of life. For every child and their family there is only one chance to get it right – it cannot wait.’
To read more about the #Followthechild campaign read this from Together for Short Lives Here